Announcing Big Changes for Our Network

PPSN News June, 2023

With gratitude to the PA Chapter of the American Academy of Pediatrics, PAIC (The PA Immunization Coalition) the generosity of the outstanding professionals who have donated their time and outstanding contributions, and our dedicated working team of survivors, family members and friends; we have launched a new and updated website.

At the suggestion of survivors all across the globe, we are now: www.polionetwork.org

“Our Polio Network, managed by polio survivors and friends, is in service to bring support and information to polio survivors, their families, caregivers and healthcare providers.  Known as the PA Polio Network (PPSN), we work with many professionals providing valuable information  to help educate and spread awareness about the late effects of the poliovirus, and the importance of being vaccinated against this terrible disease. We serve others all across the globe.”

Across the top on the Home Page on our website, you will easily find these headers. Hover over that title to see what’s inside:

Post-Polio Syndrome, Professionals, Polio, Our Advocacy, Articles/Resources

Over the next few months, we will cover each of these Heading Sections in our monthly newsletters.

Transitioning from www.papolionetwork.org to www.polionetwork.org

In the summer of 2014, we began our journey creating and maintaining this network of support for all polio survivors and our caregivers. We did so with the investment of $90 for our domain name, a free website and the best group of professional and non-professional volunteers possible.

Nine years later, we are the home of Bruno Bytes, DeMayo’s Q&A Clinic, the Encyclopedia of Polio and PPS, Living with Post-Polio Syndrome, Primary Care Perspective, Polio: Putting the pieces of Polio History Together and more than 100 Polio Survivor Stories. We are advocates (both through our written work and personal attendance) regarding the reality of the Late Effects of Polio and the gift of the Polio Vaccine.

The mission of our Polio Survivors Network is to serve ALL polio survivors, both in the US and abroad by providing information for them, post-polio support groups, survivors’ families, and their caregivers.

We draw attention to the importance of being immunized against polio and all the crippling childhood diseases.

We are survivors of a vaccine preventable disease who share a passion with Rotarians all over the US and abroad as we support Rotary International’s focus on disease prevention and immunization. Together, those who are not affiliated with their local Rotary Clubs have joined us with the gift of more than 100,000 polio vaccines through Team Survivor.

With this amount of information, our website needed significant search options that we did not have.  In addition, we learned from you that with the “PA” in front of our name, survivors believed that they could not “Join” our network unless they were from the Keystone State. We are polio survivors who are serving others – regardless of where we live.

We are grateful for the trust and funding from the PA Chapter of the American Academy of Pediatrics and the PA Immunization Coalition.  In addition, we must thank the owner and website designers at Stay Calm Industries. They spent more hours with us than we can count learning about the realities of this terrible disease and the importance of being able to communicate the gift that comes with the work from outstanding, generous professionals – work that can help us help ourselves once again.         

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The Risk of Post-Polio Syndrome Among Immigrant Groups in Sweden

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The Polio Vaccine: A Medical and Personal Frontier