Living with Post-Polio Syndrome

Post-Polio Syndrome can be difficult and confusing to live with. On top of that, symptoms can arise over 30 years after the onset of polio. Below are a variety of articles across a variety of topics to help you, your loved ones, and your caregivers better understand PPS and the effects that it has on daily life.

Biographies of our professional contributors are available in the navigation bar under “Professionals”

Related Resources:

WHAT IS POST-POLIO SYNDROME ?
Diagnosing PPS
FOR CAREGIVERS
ENCYCLOPEDIA OF POLIO & PPS
Anesthesia Warning Card
PRIMARY CARE
Symptom Checklist & Treatment Warnings
REHABILITATIVE MEDICAL CARE

Articles and Videos Related to Living with Post-Polio Syndrome:

(Use the Index to search for specific topics)

Articles (Alphabetical Order)
William M. DeMayo, MD
William DeMayo, shoulder anatomy, shoulders, rehabilatative medicine, biologics
Shoulders: Managing the Pain
William M. DeMayo, MD
William DeMayo, shoulder anatomy, shoulders, rehabilatative medicine, biologics
Read More →
William M. DeMayo, MD
William DeMayo, shoulder anatomy, shoulders, rehabilatative medicine, biologics
Polio Network
sadness, loneliness, psychological health, psychology, William Montgomery, Daniel Wilson, Richard Bruno, fear, chronic disease
WHY Do I Feel So Alone?
Polio Network
sadness, loneliness, psychological health, psychology, William Montgomery, Daniel Wilson, Richard Bruno, fear, chronic disease
Read More →
Polio Network
sadness, loneliness, psychological health, psychology, William Montgomery, Daniel Wilson, Richard Bruno, fear, chronic disease
Polio Network
loneliness, helplessness, fear, chronic disease, chronic pain, William Montgomery
Polio Survivors - Why Do We Feel So Alone?
Polio Network
loneliness, helplessness, fear, chronic disease, chronic pain, William Montgomery
Read More →
Polio Network
loneliness, helplessness, fear, chronic disease, chronic pain, William Montgomery
Richard L. Bruno, HD, PhD
chronic fatigue, fatigue, blood pressure, low blood pressure, Richard Bruno, vagus nerve, David Bodian
Fatigue, Brain Stem Damage and Low Blood Pressure
Richard L. Bruno, HD, PhD
chronic fatigue, fatigue, blood pressure, low blood pressure, Richard Bruno, vagus nerve, David Bodian
Read More →
Richard L. Bruno, HD, PhD
chronic fatigue, fatigue, blood pressure, low blood pressure, Richard Bruno, vagus nerve, David Bodian
Polio Network
advocacy, anesthesia, anesthesia warning cards, symptom checklist and treatment warnings, treatment concerns, Mark Lopatin, PHI, Post-Polio Health International, Dianne Wall, physician, Frederick Maynard MD, late effects, post polio syndrome, newsletter 2025
May 2025 Newsletter
Polio Network
advocacy, anesthesia, anesthesia warning cards, symptom checklist and treatment warnings, treatment concerns, Mark Lopatin, PHI, Post-Polio Health International, Dianne Wall, physician, Frederick Maynard MD, late effects, post polio syndrome, newsletter 2025
Read More →
Polio Network
advocacy, anesthesia, anesthesia warning cards, symptom checklist and treatment warnings, treatment concerns, Mark Lopatin, PHI, Post-Polio Health International, Dianne Wall, physician, Frederick Maynard MD, late effects, post polio syndrome, newsletter 2025
Polio Network
Post-Polio Health International, PHI, post polio syndrome, PPS, living with PPS, late effects, Frederick Maynard MD
The Late Effects of Polio
Polio Network
Post-Polio Health International, PHI, post polio syndrome, PPS, living with PPS, late effects, Frederick Maynard MD
Read More →
Polio Network
Post-Polio Health International, PHI, post polio syndrome, PPS, living with PPS, late effects, Frederick Maynard MD
Polio Network
primary care, PPS Physicians, diagnosis, PPS, living with PPS, diagnosis of exclusion, physician, symptom checklist, PPS symptom checklist, symptom checklist and treatment warnings, treatment concerns
What Information Can I Give My Physician About the Late Effects of Polio ?
Polio Network
primary care, PPS Physicians, diagnosis, PPS, living with PPS, diagnosis of exclusion, physician, symptom checklist, PPS symptom checklist, symptom checklist and treatment warnings, treatment concerns
Read More →
Polio Network
primary care, PPS Physicians, diagnosis, PPS, living with PPS, diagnosis of exclusion, physician, symptom checklist, PPS symptom checklist, symptom checklist and treatment warnings, treatment concerns
Marny K. Eulberg, MD
legs, leg length discrepancy, Marny Eulberg
Not all Legs are Created Equal
Marny K. Eulberg, MD
legs, leg length discrepancy, Marny Eulberg
Read More →
Marny K. Eulberg, MD
legs, leg length discrepancy, Marny Eulberg
Polio Network
Frederick Maynard MD, PHI Video, PHI, Post-Polio Syndrome, physician
“Ask the Doctor” with Frederick M. Maynard, MD (Video)
Polio Network
Frederick Maynard MD, PHI Video, PHI, Post-Polio Syndrome, physician
Read More →
Polio Network
Frederick Maynard MD, PHI Video, PHI, Post-Polio Syndrome, physician
Polio Network
PPS, living with PPS, Post-Polio Sequelae, post-polio syndrome, Richard Bruno, Polio Australia, PHI, Post-Polio Health International, David Bodian
Post-Polio Syndrome vs Post-Polio Sequelae.
Polio Network
PPS, living with PPS, Post-Polio Sequelae, post-polio syndrome, Richard Bruno, Polio Australia, PHI, Post-Polio Health International, David Bodian
Read More →
Polio Network
PPS, living with PPS, Post-Polio Sequelae, post-polio syndrome, Richard Bruno, Polio Australia, PHI, Post-Polio Health International, David Bodian
Other Contributor
body temperature, temperature, heat, cold, PPS, living with PPS, Polio Australia
Heat and cold intolerance (thermoregulation)
Other Contributor
body temperature, temperature, heat, cold, PPS, living with PPS, Polio Australia
Read More →
Other Contributor
body temperature, temperature, heat, cold, PPS, living with PPS, Polio Australia
Other Contributor
temperature, living with PPS, PPS, cold, heat, Polio New Zealand
Late Effects of Polio and Temperature Intolerance
Other Contributor
temperature, living with PPS, PPS, cold, heat, Polio New Zealand
Read More →
Other Contributor
temperature, living with PPS, PPS, cold, heat, Polio New Zealand

(Click on the lower right side of the Index Box to search for specific topics)

Video Archive
“Ask the Doctor” with Frederick M. Maynard, MD (Video)
“Ask the Doctor” with Frederick M. Maynard, MD (Video)
What it was like to live in an Iron Lung (Video)
What it was like to live in an Iron Lung (Video)
How Polio and PPS Impact our Character, Personality, and Emotional Experiences (Video)
How Polio and PPS Impact our Character, Personality, and Emotional Experiences (Video)
Who Helps Those Who are Experiencing Post-Polio Conditions? (Video)
Who Helps Those Who are Experiencing Post-Polio Conditions? (Video)
What is Most Difficult for Those With Post-Polio Conditions? (Video)
What is Most Difficult for Those With Post-Polio Conditions? (Video)
Do Those Exposed to Polio Face Health Risks?(Video)
Do Those Exposed to Polio Face Health Risks?(Video)
What are the Main Symptoms of Post-Polio? (Video)
What are the Main Symptoms of Post-Polio? (Video)
The Iron Lung and Polio (Video)
The Iron Lung and Polio (Video)
How is Post-Polio Diagnosed and by Whom? (Video)
How is Post-Polio Diagnosed and by Whom? (Video)
How Would a Clinician Identify Who is at Risk for Post-Polio? (Video)
How Would a Clinician Identify Who is at Risk for Post-Polio? (Video)
What Does a Person Experiencing Post-Polio Look Like? (Video)
What Does a Person Experiencing Post-Polio Look Like? (Video)
The Laws of Polio Electrodynamics (Video)
The Laws of Polio Electrodynamics (Video)

Diagnosing Post-Polio Syndrome

Archive
Polio Network
primary care, PPS Physicians, diagnosis, PPS, living with PPS, diagnosis of exclusion, physician, symptom checklist, PPS symptom checklist, symptom checklist and treatment warnings, treatment concerns
What Information Can I Give My Physician About the Late Effects of Polio ?
Polio Network
primary care, PPS Physicians, diagnosis, PPS, living with PPS, diagnosis of exclusion, physician, symptom checklist, PPS symptom checklist, symptom checklist and treatment warnings, treatment concerns
Read More →
Polio Network
primary care, PPS Physicians, diagnosis, PPS, living with PPS, diagnosis of exclusion, physician, symptom checklist, PPS symptom checklist, symptom checklist and treatment warnings, treatment concerns
Polio Network
video, Polio Australia, PPS, symptoms, diagnosis, diagnosis of exclusion, Polio Australia Video
What are the Main Symptoms of Post-Polio? (Video)
Polio Network
video, Polio Australia, PPS, symptoms, diagnosis, diagnosis of exclusion, Polio Australia Video

What are the Main Symptoms of Post-Polio Conditions? (Polio Australia Video)

Read More →
Polio Network
video, Polio Australia, PPS, symptoms, diagnosis, diagnosis of exclusion, Polio Australia Video
Polio Network
video, Polio Australia, diagnosis, diagnosis of exclusion, rehabilitation, Polio Australia Video
How is Post-Polio Diagnosed and by Whom? (Video)
Polio Network
video, Polio Australia, diagnosis, diagnosis of exclusion, rehabilitation, Polio Australia Video

How is Post-Polio Diagnosed and by Whom? (Polio Australia Video)

Read More →
Polio Network
video, Polio Australia, diagnosis, diagnosis of exclusion, rehabilitation, Polio Australia Video
Polio Network
video, Polio Australia, diagnosis, diagnosis of exclusion, Polio Australia Video
Who Gets Post-Polio Conditions and What are They? (Video)
Polio Network
video, Polio Australia, diagnosis, diagnosis of exclusion, Polio Australia Video

Who Gets Post-Polio Conditions and What Are They? (Polio Australia Video)

Read More →
Polio Network
video, Polio Australia, diagnosis, diagnosis of exclusion, Polio Australia Video
Post-Polio Health International
diagnosis, post-polio evaluation, diagnosis of exclusion, Post-Polio Syndrome, Post-Polio Health International
Components of a Post-Polio Evaluation (Video)
Post-Polio Health International
diagnosis, post-polio evaluation, diagnosis of exclusion, Post-Polio Syndrome, Post-Polio Health International
Read More →
Post-Polio Health International
diagnosis, post-polio evaluation, diagnosis of exclusion, Post-Polio Syndrome, Post-Polio Health International
Other Contributor
Christopher Reeve, Christopher Reeve Foundation, diagnosis, testing and diagnosis, polio symptoms, symptoms, diagnosis of exclusion, living with PPS
Diagnosing Post-Polio Syndrome (PPS)
Other Contributor
Christopher Reeve, Christopher Reeve Foundation, diagnosis, testing and diagnosis, polio symptoms, symptoms, diagnosis of exclusion, living with PPS
Read More →
Other Contributor
Christopher Reeve, Christopher Reeve Foundation, diagnosis, testing and diagnosis, polio symptoms, symptoms, diagnosis of exclusion, living with PPS
Marny K. Eulberg, MD
diagnosis, testing and diagnosis, fatigue, nerve conduction study, diagnosis of exclusion, diagnostic procedures & blood tests, Marny Eulberg, EMG
One Doctor’s Visit Does Not a Comprehensive PPS Evaluation Make
Marny K. Eulberg, MD
diagnosis, testing and diagnosis, fatigue, nerve conduction study, diagnosis of exclusion, diagnostic procedures & blood tests, Marny Eulberg, EMG
Read More →
Marny K. Eulberg, MD
diagnosis, testing and diagnosis, fatigue, nerve conduction study, diagnosis of exclusion, diagnostic procedures & blood tests, Marny Eulberg, EMG
Richard L. Bruno, HD, PhD
diagnosis, testing and diagnosis, symptoms, diagnosis of exclusion, EMG
Post-Polio Syndrome: A Diagnosis of Exclusion
Richard L. Bruno, HD, PhD
diagnosis, testing and diagnosis, symptoms, diagnosis of exclusion, EMG
Read More →
Richard L. Bruno, HD, PhD
diagnosis, testing and diagnosis, symptoms, diagnosis of exclusion, EMG
Other Contributor
muscle pain, diagnosis, fibromyalgia, diagnosis of exclusion, Mark Lopatin, pain
Muscle Pain, Post-Polio and the Importance of Being a Medical Detective
Other Contributor
muscle pain, diagnosis, fibromyalgia, diagnosis of exclusion, Mark Lopatin, pain
Read More →
Other Contributor
muscle pain, diagnosis, fibromyalgia, diagnosis of exclusion, Mark Lopatin, pain
Post-Polio Health International
testing and diagnosis, PHI, Post-Polio Syndrome, diagnosis of exclusion, diagnosis, living with PPS
Diagnosing Post-Polio Syndrome
Post-Polio Health International
testing and diagnosis, PHI, Post-Polio Syndrome, diagnosis of exclusion, diagnosis, living with PPS
Read More →
Post-Polio Health International
testing and diagnosis, PHI, Post-Polio Syndrome, diagnosis of exclusion, diagnosis, living with PPS
Other Contributor
survivor stories, Marny Eulberg, video, PPS, polio survivors, symptoms, diagnosis of exclusion, fatigue, treatment, Eulberg Video
Post-Polio Syndrome with Marny Eulberg, MD (Video)
Other Contributor
survivor stories, Marny Eulberg, video, PPS, polio survivors, symptoms, diagnosis of exclusion, fatigue, treatment, Eulberg Video

Post-Polio Syndrome - What is it? How do you treat it? What does it feel like? Some answers from Marny K. Eulberg, MD (Video)

Read More →
Other Contributor
survivor stories, Marny Eulberg, video, PPS, polio survivors, symptoms, diagnosis of exclusion, fatigue, treatment, Eulberg Video
Marny K. Eulberg, MD
diagnosis, Marny Eulberg, diagnosis of exclusion, PPS, Post-Polio Syndrome
Is Post-Polio Syndrome Progressive?
Marny K. Eulberg, MD
diagnosis, Marny Eulberg, diagnosis of exclusion, PPS, Post-Polio Syndrome
Read More →
Marny K. Eulberg, MD
diagnosis, Marny Eulberg, diagnosis of exclusion, PPS, Post-Polio Syndrome